Heart related organisations
- Arrhythmia Alliance
- British Heart Foundation
- Livewires Northern Ireland Patient Support Group - ICD
- British Cardiovascular Society
- Heart UK
ICD Support Groups
- Oxford ICD Group
- Livewires Northern Ireland Patient Support Group
- Bournemouth ICD Group
- St George’s London ICD Support Group
ICD related Information Publications and Web sites
The British Heart Foundation has published Heart Information Series Number 19 Booklet which is for people who are about to have, or already have, an ICD implanted. It is also useful for family and friends who want to find out more about ICDs. It explains what an ICD is and what it does, how the ICD is implanted and what it feels like when the ICD delivers its treatment. It also explains what happens at follow up appointments and answers some of the common questions that people ask about ICDs. The booklet may be downloaded from the British Heart Foundation site in PDF format.
The Arrhythmia Alliance produce an ICD Patient Information booklet which is intended for use by people who have, or are about to have, an ICD implanted and their carers. The information provided comes from research and patients’ experiences. The booklet may be downloaded from the Arrhythmia Alliance site in PDF format.
The National Institute for Health and Clinical Excellence (NICE) have a booklet about ICDs explaining NICE guidance on their use. The information is for people with arrhythmia’s, their families and carers, and the public. The booklet may be downloaded using the link above as indeed can other information about ICDs by NICE.
Activate Your Heart. ICD Information from the University Hospitals of Leicester NHS Trust.
Family Doctor A short but succinct description of ICDs from the American Academy of Family Physicians.
BMJ Best Treatment. Having a defibrillator fitted, an excellent publication covering the implantation procedure. The information in the booklet is based on Clinical Evidence, the British Medical Journal’s worldwide survey of the best, most up-to-date medical research, used by doctors everywhere.
Automatic External Defibrillators - The Department of Health web site detailing their programme to have AED’s available in many public places.
LifeBeat online. Patient information experiences from Boston Scientific (formally Guidant)
ICD Manufacturers
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